Date: 23 Feb 1996
From: dmmunson@execpc.com
To: valerie@nothing.ucsd.edu (Valerie E Polichar)
Subject:  ramblings about Rick
Content-Type: text
X-UIDL: 6199dff4330a41850568a1d100707e40
Status: RO

hi all,

sorry to make this a form letter, but i've had a lot on my mind lately and wanted to share it with all of you...and well, i'm too lazy to write you each individually...cuz i think it would be just too emotionally devastating for me.

As many of you may already know, this week+ has been hell. there has been more death and prospective death than i think i can handle. i'm not quite sure how i'm keeping things together, but i know that without the Bear i'd be more of a basket case than i already am.

My good friend Rick has been fighting to live as long as he can with AIDS. He's still fighting. The Bear and i spent 13 hours with him on Saturday....and many hours sunday and today. Each day, each hour, his body (and slowly now his mind) is going down hill.

i've seen so many friends live and die w/ HIV and AIDS, but i don't think i've ever seen someone so fucking skinny. you can see each bone, see the tendons and ligaments pushing up against the skin that barely covers his bones. he has so little (read no) butt that you can actually see his asshole because he doesn't have any cheeks. His testosterone is so depleted that his body hair is about half what it used to be. His eyes are so sunken that sometimes it's hard to remember what he used to look like.

Over the weekend, the Bear and i saw a photo of him  that was taken about 2 years ago. *That* picture looked so odd to me, not like the Rick i know now. It's like i've *adjusted* to the way he looks so much that the image of a healthier Rick looks foreign. Now that made me feel Crazy!

We spent something like 13 hours with him yesterday...about three hours of which Rick was telling the Bear to write down for his attorney his wishes for his will, not yet written. Rick has always put everything off to the last minute, always certain that there will be time to do *whatever* later. And just like the Bear always says about hirself... Rick will probably be late to his own funeral.

Who will come to his funeral, though? Is it too late for him to die and be remembered by his friends? They are already gone, already dead. Who will remember him? Who will cry over him? Who will be left to share memories and stories with? Who will remember Alan Stroik telling everyone about Rick's "hoover butt"... or the times Rick and i spent cruising the husky bears (how he liked the blonde ones and i liked the brown haired ones)...or how he HATED windows, but knew more than most about DOS and about hardware.... or how he loved violet wands...and the time that i had radiation burns for days on my nipples because i didn't want any of the guys to "beat" me and be able to take more than i could...or how he adored the leather pants he bought and wore them every time he was able to go out...or about how he spent jail time because he 'hotwired' cable tv for friends...or how opinionated he was and how he would stand up for what he believed in... or how he'd ride that little 3-banger to the Boot Camp in the summer w/ those faggy sunglasses on and his hair blowing back in the wind... or when he and Craig Beeson wore those god-awful bright yellow dresses at the Badger's run and handed out condoms...or..... ...Will i be the only one who remembers? Will i be the only one who cries? Who will carry on the tradition(s)? Who will pass along was was to those who are still too young to know the difference between old guard and new guard and those who just think of leather as a fashion statement?

There is so much irony. ...so many thing i never dreamed would happen... i NEVER imagined that the Bear and i would be the only people who would visit him in the hospital, who would go get things like Classic Coke and Nestle Crunch bars for him... or photocopy the signed durable power of attorney papers... or writing down, per his request, his wishes to be given to the lawyer regarding his will, or literally wiping his ass.   Why us? Why doesn't anyone else give a damn? Why doesn't anyone even *CALL* him or send him a card??? ...no one... just me and the Bear...two people who belong to groups of people Rick always made disparaging remarks about: women and transsexuals. He's always liked us though... always said we were the exception, that we weren't like *other* women...and i doubt he's ever met another FTM before. He's changed his opinion about women and TSs over time, realizing that a woman (well, sort of) and a TS (3 actually) are the only people who have come through for him, the only people who have been there with him. Bear and i are the ones left, the ones he trusts... the people who he begs not to leave his hospital room. the words keep echoing in my head.... "*PLEASE* don't go!*"... "Can you stay a little longer?"... "I'm so embarrassed"... That was last night. The phrase he kept muttering tonight that keeps resonating is "I think I'm losing it"...

he never complained about anything--at least nothing personal (he always bitched about everything else that was trivial, but never anything personal). He's still not complaining... but he's so scared and so alone and so fucking sick and weak. i think this is round #7 with PCP...and he's survived this long being allergic to sulfa-based drugs and to pentamadine! Geez.

The Bear said yesterday... "If Ronald Reagan is a body without a brain, then Rick is a brain without a body." there is nothing left of him physically...yet the thinner he gets, the more i can see of the true Rick. What's *inside* of him is kind and gentle and genuine...and scared shitless at the prospect of dying, especially alone.

It has become very important to me to be there, if possible, when he dies. i can't bear the thought of him laying there alone, dying alone.

There was a really wonderful nurse tonight who knew that we were the only people visiting him and the only people who care about him enough to be there. She took us aside and let us know that there was--for the first time he's ever been in the hospital--a FULL CODE on his chart. She spoke of how she and several of the other nurses have "bonded" with him over the past several times he's been at West Allis Memorial and that they are concerned that a Full Code will kill him, inhumanely.... His ribs would break.

SHE didn't want to have to put him through that. She was so kind, suggesting that we speak w/ Rick's doctor and see if his doctor could tell Rick about what the full code really means... or if he is less competent tomorrow, if the legal power of attorney could/would take effect and the full code could be changed to no code.

Talking to the nurse somehow made me feel a little less alone tonight. She let us talk. She *listened* to how alone we were and how Rick had no one. She hugged us and made me feel like she really cared/s about Rick.

There is something that has been unsettling to me about all of this--aside from the obvious. i've been wanting so badly to have my chest reconstructed, but have realized that hell will probably freeze over before i ever have the kind of cash that's necessary for surgery. Well... when Rick dies, i may have my wish fulfilled... he's made me one of the beneficiaries of his life insurance. The policy is set up to be divided 4 ways equally--all either born or "made" women.

All the leather solidarity that supposedly existed, all the gay male bonding... and who does Rick have left? Who does he trust? Who does he want to leave his money to? 3 transgendered folks and his mother! What a strange concept... Bear and i have been true to our words...we have *been there* for him... so he dies and i can have the chest i've dreamed of. i'd live the rest of my life w/ the chest i have, if it would mean that Rick would be here to share the rest of that life with me...

Thanks for reading my ramblings.......

michael...the Bear's cub


Date: 23 Feb 1996 10:28:54 -0800
From: valerie@nothing.ucsd.edu (Valerie E Polichar)
Message-Id: <199602231828.KAA09455@nothing.ucsd.edu>
To: dmmunson@execpc.com
Subject: Re: ramblings about Rick
Content-Type: text
X-UIDL: 6199dff4330a41850568a1d100707e40
Status: RO

Don't feel like you need to answer this, I know things are intense.  It sounds like the lifeforce is burning bright in Rick's soul and I can totally understand that.  He just wants to squeeze out all the time he can, all the experience he can, not to go gently into that good? night... Maybe too he is slowly giving you as much of his personality as he can 'download' so he won't be lost when his body is.  Tell him that you've told your friend in California so much about him that she can swear he will never be forgotten :)

love you.

V


A chronology of dying - the last few days.....

wiping a friends ass

saturday feb 17
spoke to bear about wishes for will. bear wrote down what he wanted. Stayed w/ him until 1:40am. he got 2 bags of blood and had to pee a lot... when he peed he had to shit. he asked me to wipe his ass. He was really concerned that we would leave when he was pottying... and would cry out "please don't go"

sunday
only stayed 4 hours or so... he asked Taft to cathederize him so he wouldn't have to get up to pee (since sat it took everything out of him). Had to shit a couple of times when we were there. Ended up getting the nurses to get a portable potty. i wiped him again. He ended up sleeping quite a bit in the evening after the nurse gave him xanix (sp). He kept waking and saying, "please don't go" and "please stay"

Monday
things were different. Worse. his lung collapsed late this afternoon, so Dr. Lopez had to do "surgery" in his room... they cut a hole in his chest in orger to put in a tube to a vaacuum so that his lung would inflate. He slept most of the evening (8-midnight). we spoke w/ a very nice nurse (susan) who informed us that there was a FULL code on his chart and that dr. taft had asked Rick repetitively about changing this. She was so sweet...she listened to us and cared. She hugged us both too! Rick had been refusing baths or changing his linens. Tonight, he had shit in his pants, so we got the nurse to help change his bottoms and wipe up his butt. She convinced him to let her give him a full scrub bath! Bear and i helped. bear did a lot of the drying w/ a towel. i helped hold him when we rolled him on his sides. When he needed to take his pills he needed help sitting up, i lifted his back to a sitting position. he wasn't able to stay "awake" enough to hold any sort of cohesive conversation. He still was well aware of who we were and cognizant of factual information.

Attorney came w/ will to sign.
Tues onward, Rick's eyesight rapidly declined.

Friday...he was refusing a lot of his meds and hadn't been eating hardly anything. He asked us before we left (midnight+) if we would look in to changing his Alexander Hamilton Life insurance policy and cashing it in via a viatical settlement, since he needed the $ to live out the rest of his life.

Saturday feb 24
The nurses on 6th floor called Bear early in the morning and suggested that we come soon to the hospital. They said that Rick had fallen out of bed the night before and that he was in worse shape... and the time was soon. he also decided on Friday night (after we left at near 2am) that he no longer wanted the oxygen mask. The nurses tried to keep it on him.

Rick's brother Jon (and his wife Pat and son steve) came to see Rick in the afternoon. At dinner time, Rick had 2-3 grand mall seizures. After the first one (which we were downstairs eating Hui's dinner), the priest was called. We gathered around Rick and all touched him while the priest prayed and annointed him with oil.

almost all of sat he wasn't very cognizant. He was talking about things in the past.... about people he wanted to get drunk with, etc.

After the seizures, the priest and nurses made mom decided on the code status--which was still full code. They had to explain again to mom that the code would harm rick more than help him. She used her medical power of attorney and told the nurses to change the records to no code.

Dr. Dorf--taft's partner--came in middle sat evening... told the family that rick was not in good shape and that he would order a morphine drip to keep him comfortable.

i decided that i would spend the night w/ him (the bear did too).

We watched over him and pseudo-slept throughout the night. The nurse kept trying to force him to use his oxygen mask and Rick made it very clear that he didn't want it. By the end of her shift, she told us that if he refused either the IV hydration/meds and/or the O2, he'd be dead w/i 8 hours.

Sunday, no one forced him to use the mask. He was semi-aware at times, but mainly just slept or talked about things that weren't in this plane.

They came in at 8am to do another chest x-ray. Rick YELLED very loudly "NO NO NO", when they sat him up. it made me angry that they were doing things to him, when he was so close to death. the respiratory therapist came in in the morning and his O2 level was down to 60.

Mom and Robert came at 11:30am. Tim--the young priest--came in right near 11:30 and prayed. The deacon woman came around 12:45. Bear had left around noon to go home to shower. The deacon, robert, mom and i made a circle around rick and prayed. We made a complete circle. The deacon holding his left hand, to robert, to mom, to me, to my holding rick's right hand. He did not respond when she called out his name.

At a few minutes before 1pm, Rick's breathing stopped being so labored...and slowed down very gradually. Mom asked if he was still breathing. i was watching and told her that it had just slowed down and become more shallow. Robert said a minute later... i don't think he's breathing. i watched more and then took rick's right wrist in my hand to feel for a pulse, which i couldn't find. And he hadn't breathed. Robert went out to find a nurse. Sue--the wonderful nurse who we spent a lot of time talking to--came in w/ a BP cuff and took his pressure....and then kneeled on the floor in front of betty and said "Mrs Gardner, i'm sorry to tell you that your son has passed". and then sue hugged her tight.

i started leaking... leaning up against the radiator by the window. Sue came over and hugged me very close.

i think we were all relieved, but all very sad.

w/in minutes, Tim, the priest came and we were all there (except the bear). Tim and the deacon--karen--administered the last rights. Tim tried to close rick's eyes, but there was so little remaining fat that he couldn't shut his eyes.

Tim took care of calling Krause funeral home and mom, robert and i headed out to make calls, etc. While we were out, the nurses came in to remove the tubes and comb his hair and put a sheet over him.

I watched a bit and helped. i couldn't reach the Bear until 1:45 since sie was checking the BBS for Rick, through his account on his Toshiba laptop.

The Bear made it to the hospital by a little after 2pm. mom and robert left for home. Bear and i sat and groked the fact that he was dead...spend almost an hour in the room w/ his dead body--eyes and mouth both open.

i was concerned that he would die either gasping for breath or saying 'oh christ'... but he just gradually stopped breathing, very peacefully and quietly.


Date: Fri, 28 Feb 1996
From: dmmunson@execpc.com
Message-Id: <199602231828.KAA09455@nothing.ucsd.edu>
To:  valerie@nothing.ucsd.edu (Valerie E Polichar)
Subject: ramblings about Rick
Content-Type: text
X-UIDL: 6199dff4330a41850568a1d100707e40
Status: RO

At 1:00pm, Sunday February 25, 1996, Richard Allison Gardner died peacefully after an incredibly long and painful battle with AIDS.

Rick--aka Lt. Starbuck, Sticky Ricky, Hoover Butt, Mr. Wizard--was one of the quietest and smartest people i've had the pleasure of knowing. He was a self-made man, a lover of blonde bears, the founder of GSN (gay sysops network) and Starcom BBS, a member of the Beer Town Badgers for many years, the creator of excentric *.bat files, and a lover of loud disco music. He was outspoken--letting people know what he thought, yet was incredibly shy. He had very few friends, since he was so difficult to get to know--but made a quiet dent in both the local leather community and BBSs across the country.

------

Aside from Rick's mother, the Bear and i were the only people who visited Rick in the hospital this time...and every other time he was in the hospital over the past 2 years. We had the pleasure of getting to know so much about him, especially over the last year. With each passing week, he revealed more and more of himself to us. Our relationship moved from a casual social friendship at the Boot Camp and w/ the Beer Town Badgers, to a friendship that was slightly deeper than just club politics, to a friendship in which Rick and i would cruise the bears together--spotting the cute one's and pointint 'em out, to a friendship that was more based on computers than anything else, to a friendship of the most intimate kind in his last several months he was alive.

I feel very honored that he chose to confide in us and share parts of himself that he had not shared w/ anyone else before. I'm stunned that he trusted us as much as he has and did. And i'm surprised that we became the primary people in his life and in his healthcare over the past few months.

Bear and i slept in the room with him over Saturday night, since we all knew the end was near. i spent a LOT of time touching him, stroking his forearms and thighs, wiping the yeast build-up from his mouth, drying his cheeks from the tears that involuntarily flowed, changed his pillowcases as he sweated through them, made sure the nurse gave him as much morphine as he wanted, and was just *there* for him. i don't think, still, even to his death, he believed that we would actually stay with him, that we would LITERALLY do anything for him. he never understood why anyone would do nice things for other people... but maybe he finally groked it by the time he died. i hope so. i hope he knew how much i love(d) him, how much i care(d) about him.

i promised him that i would be there 'til the end. fortunately, i was with him when he died Sunday afternoon. The Bear had gone home to shower and change, but i stayed. His breathing which had been so labored, slowed down and shallowed over the hour before he died. i held his hand and forearm... his breathing just gradually slowed to a stop, ending his suffering, bringing him to a place of rest and peace. 

i'm not sure what my life will be like without him physically in it... but i know that he will always be with me. i miss him so much already and know that the impact of his death has just barely hit me. Each time i see a big, hairly blonde bear, i will think of him--remember him. Each time i get frustrated because i can't figure something out, i'll hear him telling me to "Read the Fucking Manual First"! He will most certainly not be forgotten--ever.